Sometimes children come and ask me what is wrong with Andreas-Rares. How
come he is not running and playing with the other kids. I thought long and hard of
what the answer to that question should be. Children understand things that
sometimes even adults struggle with. But what I have noticed is that children
feel more than they understand and sometimes, what they understand is filtered
through their feelings. If there is one thing I learned during the last years is that exclusion starts from home. Society comes to strongly reinforce what people have already led their children to believe. Most parents don’t even realize they are doing it because it has to do with their feeling of “normality” which, they expect to be accepted as a given.
In my opinion, social “normality” does not exist.
The problem with this approach is that a parent would start from the premises
that their actions and their children’s actions need to fit, embrace or
otherwise obey the society rules. So they are raising their children to fit in.
Which is not absurd but it defeats the purpose of parenting.
I believe a parent’s purpose should be to nurture and shape the child’s world
within. Help them learn how to express better their needs, how not to be scared
of expressing their feeling no matter what society will label them as, how to
solve their own problems without always looking for the easy way out, how to
ask for help when they need to, in short, how to think independently.
The thing is that society changes its rules every generation. The rules
that parents are familiar with from their childhood and they are trying to
impose to their children are already obsolete.
Why is it important to give children a chance to shape their own
society, with their own set of new rules? Because the old rules are broken, because
for generations we keep hanging on to stereotype thinking that unless we let go, they won’t disappear. Things
like:
-
- Child
screaming in the supermarket. Everyone gives killer looks to the mother – “Bad
mother” look; “Make him stop” look; “You are bothering me” look and so on.
Succumbing under social pressure the mother turns to the child and threatens him.
-
- Special needs child has a repetitive spastic
movement in his wheel chair in the middle of a crowded mall. People either look
at him like at a wounded animal that needs to be put down or turn their faces
in disgust.
-
- Severely
spastic child, wheelchair bound. His parents take him out for walks only after
dark.
It takes strength to go against the “society rules” and when you have a
special needs child, strength is something you don’t have to spare.
Here, as in many other countries, under the shiny glow of the special needs programs and activities there lies a very old and twisted believe that it’s a shame to have a special needs child. A special needs child is something to be hidden from the light of day, forgotten somewhere in a corner and never to be spoke of again.
Here, as in many other countries, under the shiny glow of the special needs programs and activities there lies a very old and twisted believe that it’s a shame to have a special needs child. A special needs child is something to be hidden from the light of day, forgotten somewhere in a corner and never to be spoke of again.
You would think that this mentality is only reserved for the people in
the villages, the ones who barely read or write, but you would be wrong. We
even had a doctor telling us that it’s bad for his soul (the doctor’s) to have
a patient who will never improve since he has a syndrome. It’s sad but very
true unfortunately.
Getting
back to our story, I decided to explain to the kids that Andreas-Rares is like a
fish in a forest. He’s is perfect as he is. He is neither “damaged” nor
inferior in any way. He is just in the wrong place, like a fish in a forest. Just because it’s harder to get to know his
world it doesn’t mean that it’s less valuable or less meaningful.
